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The definition of disability and disability related data collection and analyses

Action by humanitarian partners to strengthen inclusion of persons with disabilities in the humanitarian response in an evidence-based manner remains highly needed – this note aims to support that effort by providing background and explanation on the definition of disability as well as on how to interpret and use data related to disability.

The note also provides elaboration on the Syria Protection Cluster (Turkey) recommended disability-related data collection methodology for humanitarian organizations and entities in northwest Syria. Thereby the note aims to stimulate and assist the broader humanitarian community in northwest Syria in adopting the Washington Group Short Set of Questions on Functioning, especially in relation to disability focused data collection and in understanding and utilizing assessment findings, specifically prevalence-rates of disability in northwest Syria.

For more elaborated description of the situation of persons with disability in northwest Syria and practical suggestions for humanitarians on enhancing inclusion of persons with disabilities in programming, this note is to be read in conjunction with the ITWG “Self-reported barriers to activities of daily living of persons with disabilities living in IDP sites in northwest Syria” brief report and recommendations.

Moreover, it is encouraged to read this note in conjunction with Chapter 4 (on data and information management) and respective annexes of the IASC Guidelines on Inclusion of Persons with Disabilities in Humanitarian Action (2019) as well as Chapter 6 (on managing data and information for protection outcomes) of the ICRC Professional Standards for Protection Work Carried Out by Humanitarian and Human Rights Actors in Armed Conflict and Other Situations of Violence (2018). Useful considerations are also put forward in: Humanity & Inclusion (2018). Disability Data in Humanitarian Action.

Operation(s)/ Webspace(s): 
Protection - Turkey Cross Border
Original Publication Date: 
11 Feb 2021
Document type: 
Coordination hub(s): 
Syria: Crisis 2011-2022